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Linda Ronstadt has this disease

Linda Ronstadt had this. Claimed her ability to sing. Tragic.

Thanks for sharing your story. My Dad of 70 just got diagnosed after 5 years of his balance deteriorating and not knowing the cause. heartbroken.

I've just seen Nigel as a panelist on Through the Keyhole, a very old tv program with David Frost and Lloyd Grossman. It's currently being shown on the Sky Challenge channel. Nigel can be seen in Series 2 Episode 4.

My grandma was diagnosed with this a couple of years ago and it was horrible watching her slowly fade, only a couple weeks ago she passed away

My dad passed away yesterday from complications of pneumonia. He suffered for 8 years, his last 6 months was painful to witness. I will never forget how my father went from normal to helpless in 8 years.

I have a home care client with PSP. I am working on convincing his wife to get him out of the house and go do something fun. Finally we have decided on a date for that. In 2 weeks we will be taking him to a motorcycle museum here in Irondale, Alabama for a day trip, lunch and back home 😊. He is VERY excited

Tell or plz write your's treatment H/o

dad, my hero got diagnosed with psp in 2021.3years changed him a lot , I feel like I need to always protect him while I was daddy's girl as Hannah said now I feel like I'm the one who's responsible for him, I love him so so so much and I can't imagine life without him , I just keep watching our old videos and photos , it hurts it hurts seeing him like that , I wish if I can do something , I hope whenever I come back and read my comment dad will be still here with us , I don't wanna lose u dad , please stay with me till I graduate , till I get married , I want my kids to meet their amazing grandfather , you are my hero and u will always be ..01/05/2024

Write to me about such symptoms under the comment. Ill for 19 years, the disease progressed slowly. Symptoms: observation, floaters, darkness, photophobia, headaches, severe buzzing in the head, narcolepsy, muscle atrophy of the whole body, muscle twitching, a feeling of inductance, body heat, sweating, severe general weakness. At the moment I am in bed 23 hours a day. Write below this comment if you have the same symptoms.

Someone with PSP is physical therapy and white boxing like we do for Parkinson’s. Is that recommended for people with PSP I was diagnosed in 2017 with Parkinson’s disease, but since I’ve been to therapy and boxing it’s been better but I have some of the symptoms my eye movement is very bad. I must move my head whenever I have to look up down or to the side reading is a real problem for me, so I don’t know if my Parkinson’s diagnosis was correct or if I have something else I do have an appointment for a nuclear ophthalmologist to go over my symptoms but reading has been difficult ever since I was young I must move my head whenever I have to look side to side or up or down. Is there any information you can give me? Thank you so much I enjoyed your, your video my name is David a Olsen thank you very much

Just found out an immediate family member was just diagnosed with PSP. Obviously were devastated, especially once we read upon it. They initially thought it was Parkinson's.

2 Corinthians 4:16-18 [16] So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. [17] For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, [18] as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal.

My name is Dave Olsen. I just wrote a comment and I just reread it. My words don’t come out right and And I’m sorry for that. This is part of my problem. What I’m thinking doesn’t come out the way I speak. I’m sorry if you can give me any help cause I think maybe I was misdiagnosed. Thank you again for all that you do and God bless. Thank you.

My name is David A, Olsen I was diagnosed in 2017 with Parkinson’s but my eye movement has always been bad. Even as a child my eyes don’t move automatically from left to right or up and down. I have to move my head when I read and sometimes my eyes, they don’t move down to the next line and I start rereading what I’ve already read. It becomes very frustrating, now that I was diagnosed with Parkinson that I’ve read up on PS P I am wondering if I was misdiagnosed I have the tendency when I’m standing still for a while I start to walk backwards and then I catch my ball. I catch myself I haven’t had too many. I haven’t had too many falls lately, but in the beginning I had I had two or three falls, and now it’s tendency tooling to go backwards and I’m stuttering. I have spit up when I eat. I was just wondering if there’s a chance I was miss diet know if there’s any help you can give me or information it would be greatly appreciated. thank you and I enjoyed your video. Thank you so much for any help you can give me.

My name is David a Olsen. I was diagnosed in 2017 with Parkinson’s disease but lately and my eye movement is not good. I don’t move automatically up or down I have to move. My head reading is very difficult because my eyes don’t move from one line to the to the next I must move my head so sometimes I go back and reread the same line by accident, very frustrating. Also, my balances isn’t good I don’t fall but I have the tendency of leaning backwards when I get up sometimes and it’s very frustrating and sometimes when I’m just standing still, the tendency to move backwards becomes regular I don’t know if my diagnosis with Parkinson was correct, I hope I don’t have PSP but is there any help you can give me or information on how to getto find out if I was diet knows properly thank you for any help you can give me. Thank you for your last video was very helpful.

My friends don’t come around anymore. Sobering..

We believe our brother has this. There are so many emotions, mostly, sadness and fear of the future for him. He is the youngest of the 5 of us, the funniest, the most social. It is beyond heartbreaking. We need to look into round the clock care. Please pray. 🙏 ❤

I think air embolism (when one or more air bubbles enter a vein or artery and block it) in brain is reason of progressive supernuclear palsy. More research is needed in this regard.

I am so sorry for your Dad and your family. I know this video was posted several years ago, but I wanted to learn about PSP. I found recently learned that my High School Coach has PSP. She helped to look out for me when I was a kid. My heart breaks for her. Sending out energy for a cure for PSP someday. Big hug for you and your Mum.

A few years ago I never even heard of PSP. Now we are living with it. We never dreamed our retirement years would be filled with such devastation. We send our deepest condolences to you and your family and to everyone who has lost a loved one. I pray for the day researchers will find a cure and or treatment for PSP as well as other brain diseases. Sending love and best wishes to all the warriors living with this horrific disease. 🙏

I've PSP, these doctors should live our life's ! So many skip the net! And are left without help. Seven years before diagnoses! Seven years of thinking your going mad!

I've been in this satiation For some years! I Really struggle!

My dad is diagnosed with psp. Hard to see how fast he is deteriorating. He is still living in a hope that there will be a cure soon and he can be cured. Very hard to see him going through this terrible disease :/

My father in law was diagnosed with psp this year, it’s absolutely heartbreaking to see him deteriorating,and being completely different person.

I would be willing to bet this so-called PSP is a direct result from the vaccines the covid-19 and or flu vaccines to be exact. The human body does not just stopped working like that you have all been conned into believing medical bulshit lies all your life. The human body is incredible and this is not a natural state does not happen naturally. Some people are actually suffering these symptoms directly after receiving the PCR test. People wake up demand the truth. Just ask yourself why is it we've never ever had experience any of these so-called diseases such as Huntington's, Parkinson's, MS etc until they brought out the vaccines

I would be willing to bet this so-called PSP is a direct result from the vaccines the covid-19 and or flu vaccines to be exact. The human body does not just stopped working like that you have all been conned into believing medical bulshit lies all your life. The human body is incredible and this is not a natural state does not happen naturally. Some people are actually suffering these symptoms directly after receiving the PCR test. People wake up demand the truth. Just ask yourself why is it we've never ever had experience any of these so-called diseases such as Huntington's, Parkinson's, MS etc until they brought out the vaccines

I’m trying to find your Facebook page Hannah x

I’m trying to find your Facebook page Hannah x

My dad has psp , it’s heartbreaking to see the decline in my dads condition…. People don’t know about this condition. Xxx

My daddy has this, 80 years old. It’s progressing so quickly! My heart hurts so badly. He is my hero, my daddy and he is just withering away right before my eyes. I believe in God and I just know that heaven is a beautiful place. Thank you so much for this video. 🙏🏻🩵

My heart goes out to those who has the disease, my brother in law has it and he is 55yrs my sister takes care of him, he is like a brother to me not a brother in law. From Cape Town South Africa

My dad passed away 6 months back, he was diagnosed wrongly every time we approached any hospitals in India.., the last diagnosis he had was 6 months back that he had PSP not parkinson.. . It's been a hell of 6 years of his life .. I don't have words to describe the pain we all suffer from PSP and families go through.. its the worst kind of disease possible .. just a big hug to all ... We will someday find a solution

(Logan -5) Hello Everyone!! I am a 66 year old resident of a senior assisted living facility, and I , not too long ago , was informed by my oldest brother, that my (our) younger brother has PSP. We originally thought that he had Parkinson's Disease, but my oldest brother let me know that the diagnoses was incorrect, and that he had Progressive Supranuclear Palsy!! All three of my brothers are up in Lake Oswego Oregon, and I'm all alone in Boise Idaho. I have plenty of fellow residents and staff to talk to , but nobody to relate to about this situation. After my brother told me what was going on with Richard (My Younger Brother), he also let me know Rich had been falling down quite a bit and after a stay in a hospital in Portland for observation, I was told that Richard was being discharged to a "Skilled Nursing Facility"!! I'm still having trouble figuring out how I should be feeling about this whole "Shit storm of Information"!!! Please help me figure things out! My gmail is laughingdragonmrp @ gmail. com. I would appreciate any help you can offer. "Thank You Everyone for Your Attention"!!

Keith & Family, so sorry and sad to see the video on your PSP. I wanted to share a small ray of hope with the experience of my BIL who was just diagnosed with PSP. For the past 2+ years he has been going for many test but was not diagnosed. We were all shocked to see his rapid decline and last Nov they thought it was Parkinsons & gave him the medication. After 2 mths on the meds there was no improvement at all. During my visit with him at Xmas, I gave him a natural product called 'Serrapeptase', within 2 weeks we could see some improvement in his speech and his ability to understand & follow our conversations. As conventional medicine gives no hope for this disease, it may be worth giving this a try. ( I originally used this myself when I had 75% scar tissue in my eye after an acute Gluacoma attack. When they did the operation on my eye they were so surprised that almost all my scar tissue was gone.)

My daddy has this 😢

I lost my father he has PSP.Feeling helpless 😢.It is hard to see him like this

My dad was misdiagnosed 😢 we are going through this now. Thank you for sharing 😢😢😢

My sister in law is in the last stages of this disease. Praying for all who are effected

I just lost my dad today from this illness that lasted 4 years. It tears my heart out.

Hello, My mother in india was diagnosed PSP in 2021...She is just 67 and used to be fighter to the core. She had symptoms from 2000 but all misdiagnosed. Now she is in advance stages and currently in Hospital as she caught some infection...Her diseases has progressed so fast in last one year that nobody could ever imagine. Doctor who diagnosed also didn't inform us properly. Its so so so disheartening so see My Mumma like this....God Plz give some treatment soon. Can't let biggest treasure of life go away like this. I lost my father when I was 14... Plz suggest what can I do to her once she come out of hospital Ashish.

توفي والدي بهادا المرض بعد اقل من سنة من ضهور الاعراض عليه و من معرفتنا بهادا المرض اللدي ليس له دواء و هو من الامراض التي تحسسك بالعجز من ان تفعل اي شيء للمريض سوي انك تحاول تخفيف اعراض المرض علي المريض و مع ذالك تبقي عاجزا امامه لا تستطيع فعل اي شيء للاسف و تبقي معانات المريض قاسية للحربي و لا قوة الا بالله

My dad is currently 55 years old and was diagnosed with psp 4 years ago. You know the rest I guess

Is this disease Genetic?

Histochemically +ve for tau and negative for amyloid neurofibrillary tangles deposition. PSNP victims needs support from the society and stories like this should be brought to public for awareness

Has anyone tried Mushrooms ?

We are a South African family whose lives were touched by PSNP. It is the cruellest condition as it rolls slowly day by day. My Mum was also first diagnosed with Parkinsons. Her first indications were the falling backwards and the lack of mobility in her facial expressions which is also a feature of Parkinsons. The most frustrating part of this type of MND is that there are insufficient numbers to do meaningful research. Let's hope they can tailor the research to require fewer numbers. Our hearts are with you across the ocean.

This is so very sad 😔 About Nigel Dempster illness Michael Proudlock who owned Foxtrot Oscar Restaurant has also sadly passed away as well 😢

Sorry to hear about your father. My father also has it, and it's so distressing. Deteriorating so quickly. 😔

These brain disorders must have an environmental toxins link- pesticides in the food chain, etc. It's a terrible disease: the evil, faster triplet of Alzheimer's & Parkinsons.